NCRAD Informed Consent
We sincerely appreciate your interest in our research. This biorepository is funded by the National Institute on Aging (NIA) to help researchers find genes that increase the risk for Alzheimer’s disease (AD) and dementia. This webpage will provide you with the information and instructions you will need to determine if this study is right for you and your family. If you have any questions at any time, feel free to contact us at firstname.lastname@example.org or toll-free at 1-800-526-2839.
What is the Purpose of This Study?
The goal of the National Centralized Repository for Alzheimer's Disease and Related Dementias (NCRAD) is to help researchers find genes that increase the risk for Alzheimer’s disease (AD) and dementia. To accomplish this goal, in 1990, NCRAD was funded by the National Institute on Aging (NIA) to provide researchers with the biological samples and data necessary for finding important genetic factors in AD and dementia. Understanding the causes of AD and dementia will likely lead to better treatments for this devastating disease.
Dementia and memory loss are devastating disorders which become more common as an individual ages. AD is the most common form of dementia among older persons. Beyond age 85, as many as 40% of individuals have AD. As the population of the U.S. continues to age, the number of individuals affected with AD will continue to rise. It is estimated that by the year 2050, there will be 14 million persons over the age of 65 affected with AD.
Therefore, NCRAD is looking for families with two or more biologically related living family members with dementia. These family members will need to provide a blood sample and medical records.
In order to determine if you are eligible for the NCRAD study, you will need to complete a few simple steps.
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