ARTFL-LEFFTDS Active Study Page

Welcome ARTFL-LEFFTDS Study staff, coordinators, and PI’s.

This section encompasses study specific tools and videos for your reference. If you have any questions, comments, or new ideas please contact Emma Lagone by email or phone (800)526-2839 or directly at (317) 278-1129.

(Visit 1)
(Visit 2)
(Visit 3)
(Visit 4)
DNA (Buffy Coat)

* Select patient populations to donate CSF

  • ARTFL: 40-50 subjects
  • LEFFTDS: 200-250 subjects

Kit Request Module

Please follow the below link to access the ARTFL-LEFFTDS Kit Request Module. This link will direct you to a REDCap database where study coordinators and staff may request kits, individual supplies, and/or labels. Please allow a total of two weeks for kit requests to be compiled and delivered to your site.

ARTFL LEFFTDS Kit Request System

Study Specific Sample Notification Forms

Please use the below downloadable forms to collect information on specimen patient demographics, collection, and processing. We respectfully ask that all completed forms be emailed ( or faxed (317-321-2003) prior to shipment. If you complete the form on the website you can choose to have it emailed automatically to us. We also ask that all shipments include a hard copy of each sample form.

Downloadable Blood Sample Form Web-based Blood Sample Form Downloadable CSF Sample Form Web-based CSF Sample Form Green Top-Sodium Heparin Redraw/Take Home Sample Form Lavender Top-EDTA Redraw/Take Home Sample Form

ARTFL-LEFFTDS Manual of Procedures

The below downloadable manual was created specifically for the ARTFL-LEFFTDS Studies. Please feel free to explore the manual through the hyperlinked ‘Table of Contents’. Questions concerning any part of the manual may be directed at Emma Lagone (, 800-526-2839) for further clarification.

ARTFL-LEFFTDS Manual of Procedures

Study Related Video Tutorials

Please explore the below videos sponsored by NCRAD for the ARTFL-LEFFTDS study.

ARTFL-LEFFTDS Training Slides

This training video and slides correspond to Tatiana’s protocol training that took place on October 6, 2015.

ARTFL LEFFTDS Training Refresher Slides (v. 10-2015)

These slides correspond to Tatiana’s protocol training that took place on May 12, 2016.

ARTFL LEFFTDS Manual Update Slides (v. 5-2016)

ARTFL-LEFFTDS Study Common Questions and Answers

The below document outlines common questions that were received from sites during the training and enrolling process.

ARTFL LEFFTDS Questions and Answers

ARTFL-LEFFTDS Site Locations